running on empty . . .

"Where's Jack?"  my daughter asks... "ahhhh mom!"  AND there he lay, not even able to make it downstairs this morning. But I really shouldnt of been too surprised, this has been going on all week. He's either in pain or he's asleep. SO another missed day of school, its gotten to the point where it makes more sense to call only when he WILL be in school. I just dread picking up the phone and calling him in sick everyday, Im sure the office women are annoyed with the same-o, same-o. SO Jacks tummy pain continues, maybe he's still full of air, I dont know. We havent heard back from the labs whether his stool cultures came back showing anything. But I really wasnt expecting them to find anything there anyway.  Of course our biggest worry is if this is just a sign that his GI issues are getting worse. More and more he is begging me not to feed him. He hasnt wanted much orally either.

Here's another day this week. I got a call from the school nurse at 2 pm telling me that Jack had fallen asleep at his desk at noon and he was still sleeping. Of course he had lost both bowel and bladder control at some point that morning. I found him laying in the nurses office wet, ugh. I understand that they like to see if he can nap and then go back to class but I kinda feel uncomfortable having him sleep for so long and not call me until hours later. When he sleeps that deep, he likely wont be in any shape to go back to class, especially if he awakes wet.



I sent an email off to Jacks Mito Drs nurse a couple days ago to see if there were any EEG results back yet. They told me a week or less and it will be 2 weeks on Monday. I just never know if NO news is good news. The sleep study results are weeks away. So here we are...praying next week is a better one for our boy.