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Seattle Sounders and Mito!

Sunday, July 17, 2011


{Seattle Sounders}

The boys had a lot of fun spending the day with their Dad.

Since Eastside Subaru is an official Seattle Sounders sponsor, on Saturday Jeff and the boys were all invited to enjoy the game in their large suite with full access to the players, field and all the food they could eat.

Also in preparation for the upcoming NW Mitochondrial Guilds 9th annual "CURE FOR MITO"  Auction on September 17th, Jeff asked the reps at Seattle Sounders if they would help support our son and the Guild by offering a donation for the auction this year. They were more than happy to and gave us 2 tickets to an upcoming game, an adult signed jersey, youth jersey, sounders scarf and a signed full size & mini sized soccer ball. And Jeff threw in a $200 full car detail at his store too! I hope this helps in some small way.

These funds are being used to support the efforts at Seattle Children's to one day have a Center for Metabolic and Mitochondrial Diseases. Last years Auction raised over $220,000 at the event, bringing a total proceeds raised over the past 8 years to almost $1.5 million for Seattle Children's! WOW!

I really cant wait to see the day when we'll have a Mito Center right here in Seattle to treat ALL patients, including adults! Sadly, there is very little support today for adults suffering with mitochondrial disease. This gives me hope that Jack will still be in good hands if once he reaches 18.



THANKS
SEATTLE SOUNDERS!

3 comments:

Kyla said...

How awesome!!

Debbie said...

Heidi....that is SO cool!
That picture is adorable of the guys in your life...such a handsome bunch!

I hope I make it this year...it's a tricky one for me with childcare,money, etc.

So I hear it feels like fall at home!? I think we will be coming home beginning of August...maybe summer will arrive then!?

Hugs...Deb

Sierra Buffum said...

I love your blog! So creative and fun! My son is 3 years old and also has Complex I Mitochondrial Disease. We are still in the process of finding out more about his type, but continue to keep our heads up. He is unable to walk, talk or eat. He also has a G-tube and many daily meds. I would love to keep in touch if possible!

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