Spreading some love . . .

We headed to Seattle Childrens this morning for more labs drawn to check Jacks CO2 levels, after a full week of wearing his O2. No results yet but Im praying they look better or at least NOT worse anyways!  Afterwards we stopped in to visit with a special Mito family.

Four year old HUDSON has spent nearly 2 weeks inpatient. Poor kiddo has had a rough couple weeks, struggling with a respiratory infection, requiring CPAP and a sleep study. It was so nice to chat with his Mom, Debbie and her beautiful daughter, Haley. Thankfully he's stable now and was later discharged in the afternoon. It was clear, they were all anxious to get home!

Before heading to the Giraffe wing, we stopped by the gift shop and Jack pick out a few little things for Hudson and his siblings. Can you tell Jack really liked this lighted fan, I think the air might of woke him up! Hudson is such a sweety, it was so good to see he was feeling better today.

  

Is she too cute or what?! Jack is just a year older than Haley.

We had to bribe them to sit together for a pic! He-He.

PLEASE pray Hudson does well with CPAP and continues to improve, 

his family has been through so much. Thinking of you Debbie!

So many of our little Mito friends are struggling right now, its heartbreaking.

Please continue to pray for all of their families tonight.

on the medical front...

Jack is doing great wearing his cannula! He even asks for it now--I know, can you believe it?! He seems to think he feels better and I havent seen any mega naps either! I guess the real test will be when he gets back to a more normal schedule with School hours. Im praying this means its helping his breathing at night, now lets hope his labs reflect that! Its just very comforting to know he isnt desatting now.

and...

The BOWL is BACK!

(CVS)

Again Jack feels awful tonight with a slight fever...sigh.

Praying this doesnt last, we're heading on vacation soon!