where to go from here. . .

Feeling frustrated.

Jack had the CT and Ultrasound of his kidneys today. We then met with a Nephrologist  to go over the results. NORMAL, so I feel very good about that...but then that means we still don't have any answers to why he had all that blood and continues to have increasing pain in both lower sides. It started with just pain on the left side, but now its also on the right side and its even more painful there. Touching him on either side causes him to cry out. He can even feel it as he walks too.

 

The Nephrologist didn't know what to tell me. She says that Kidneys don't really cause pain but only kidney stones or some kind of obstruction would cause pain there, he has neither. His urine was also negative of blood today. BUT she is sending it out to get a calcium/creatinine ratio on it though to determine if his urine has any a build up of calcium. Apparently this can cause a gritty substance in there but normally that wouldn't cause any pain. His temp remains only a bit elevated between 99.7-100. His labs were flagged as HIGH with the WBC but she said not enough to say it points to an infection.

 

 

(You can see he was more than happy to have the CT scan once he found out it was without contrast, meaning NO IV line or needles today! whew.)

  

So we're back to square one with this pain and where all that blood was coming from.

So basically Nephrology believes its a Urology issue again because the kidneys show no sign of any stones, obstruction or any cause of the bleeding. But Urology said this was a kidney issue because his urine culture never grew anything, showing this was not a UTI.

Besides a bladder thing, she did say that this could also be Muscular or Skeletal. Which I thought was really odd since this all started the day he had all that blood that morning. Thinking how can two completely different issues start the same day and really not be related to each other...

In the mean time Ive got a little boy that isn't feeling so well. He's having bouts of dizziness, headaches and he is sore.  Just trying to figure out how I can send him off to school tomorrow morning feeling so crummy.

So its a waiting game. If the pain increases or he develops more of a fever then Ill just have to take him in to see if anyone can figure this out. Until then I'm praying the ibuprofen will help and this just goes away on its own.  Of course this all happens AFTER our big fail with the Pain Clinic appt, ugh.

SO AGAIN, we put Jack through more testing that didn't give us any answers in the end. Yes, in this case I felt we had no other choice to be sure his kidneys were healthy, but with each test and no answers, I'm questioning my every decision...just hate knowing if any of them are the right ones.