Life with Jack: happy heart's day :)

happy heart's day :)

Tuesday, February 14, 2012

{ this is love. }

4 comments:

Child of God said...: Sweet!
Happy V Day.
<><; February 15, 2012 7:09 AM
Hope said...: He is the cutest little boy ever.; February 15, 2012 8:42 AM
Patrick said...: This comment has been removed by the author.; February 15, 2012 11:10 PM
Patrick said...: I still belive in miracles! Betting my all on his health gets better soon! One day Jack can start living his life with his fullest. Never give up on hope! Hope gives you the power beliving in tomorrow. The tomorrow brings you a better day with sunrise and ending it with a beatiful sunrise.; February 15, 2012 11:14 PM

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Welcome! I'm Heidi. After years of working, I'm now a busy stay at home mom of 4 amazing kiddos with a very expensive art degree! I love photography, as you can see I dont have to go far to find great subjects! I'm also a wife of 18 yrs to an incredible guy. We make our home in the NW, near Seattle WA. What started out as just for fun, blogging has in turn been a form of therapy for me as I learn to cope with our youngest son's diagnoses of Mitochondrial Disease. I hope in some small way I'm also helping spread awareness to this progressive and devastating disease that affects so many other families. God continues to give me strength and always reminds me how blessed we are.

a spirited and spunky 9 year old and our little hero. He entered this world 5 wks early, fighting from the very start. After years of therapy, too many tests and procedures to count, including 2 misdiagnoses, in 2008 he was diagnosed with Mitochondrial Cytopathy I+III & IV. Mito is a progressive disease affecting any organ in the body, currently there is no cure. Jack has many issues but his low muscle tone and GI system is what he struggles with most. Jack has been 99.9% G-tube fed since age 2. Despite his daily challenges, he's stable today. We continue to manage new issues as they arise and do our best to keep him well. He's one amazing little boy and my heart.

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happy heart's day :)

Tuesday, February 14, 2012

4 comments:

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About Me. . .

Jack. . .

Senna. . .

Easton. . .

Logan. . .

Another Mito Angel

Mags, 6.18.08 - 2.26.11

Ella, 8.21.08 - 5.19.09

99 Balloons

So what's Mitochondrial Disease anyway?

Previous Posts

{Faces of Mitochondrial Disease, Jack 5:13}

{before Jack's Mito diagnoses, created 3.11.07}

{Life with Mitochondrial Disease, pray for a cure}