Life with Jack: wordless wednesday. . . tubie bling :)

wordless wednesday. . . tubie bling :)

Wednesday, February 15, 2012

{tubie-licious}

5 comments:

Child of God said...: Heidi,
You are amazing with that camera! I love this picture.

Blessings,
<><; February 15, 2012 8:54 PM
IMPACT with prayer said...: Awesome picture...Just beautiful! You have such a wonderful gift♥

God Bless :); February 16, 2012 6:00 AM
Carrie said...: Jack is awesome and so is his mom. :); February 17, 2012 10:18 PM
Carrie said...: Jack is awesome and so is his mom. :); February 17, 2012 10:18 PM
Carrie said...: Jack is awesome and so is his mom. :); February 17, 2012 10:18 PM

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Welcome! I'm Heidi. After years of working, I'm now a busy stay at home mom of 4 amazing kiddos with a very expensive art degree! I love photography, as you can see I dont have to go far to find great subjects! I'm also a wife of 18 yrs to an incredible guy. We make our home in the NW, near Seattle WA. What started out as just for fun, blogging has in turn been a form of therapy for me as I learn to cope with our youngest son's diagnoses of Mitochondrial Disease. I hope in some small way I'm also helping spread awareness to this progressive and devastating disease that affects so many other families. God continues to give me strength and always reminds me how blessed we are.

a spirited and spunky 9 year old and our little hero. He entered this world 5 wks early, fighting from the very start. After years of therapy, too many tests and procedures to count, including 2 misdiagnoses, in 2008 he was diagnosed with Mitochondrial Cytopathy I+III & IV. Mito is a progressive disease affecting any organ in the body, currently there is no cure. Jack has many issues but his low muscle tone and GI system is what he struggles with most. Jack has been 99.9% G-tube fed since age 2. Despite his daily challenges, he's stable today. We continue to manage new issues as they arise and do our best to keep him well. He's one amazing little boy and my heart.

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wordless wednesday. . . tubie bling :)

Wednesday, February 15, 2012

5 comments:

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About Me. . .

Jack. . .

Senna. . .

Easton. . .

Logan. . .

Another Mito Angel

Mags, 6.18.08 - 2.26.11

Ella, 8.21.08 - 5.19.09

99 Balloons

So what's Mitochondrial Disease anyway?

Previous Posts

{Faces of Mitochondrial Disease, Jack 5:13}

{before Jack's Mito diagnoses, created 3.11.07}

{Life with Mitochondrial Disease, pray for a cure}